Goodbye Methotrexate, hello Humira

Well I was never sure of what it did, but I wake up every morning no later than 4am in terrible pain with abdominal cramps so that drug is not entering my system again, at the suggestion of my nurse. Anyway, the consultation went well, I go back on Friday to confirm the chest x-ray and TB test were OK, then I have to wait about a month for funding to be approved. I should be bitter perhaps about waiting again when I’ve worked for 21 years and paid so much tax and NI, but hey, I just want the new drug and another month is bearable. When I asked if the drug cost £10k a year she said it was more than that!

Once delivery has been arranged a nurse will then come round to check I’m using the injection pen properly – I played with a demo pen yesterday and it all seemed straightforward. Injecting doesn’t bother me, especially if the benefits are as good as I’m hoping for; finding a fleshy bit on my body may prove difficult though! I’m not building my hopes up too high, but it does sound promising and after the last six months I’d try most things to improve my quality of life. I want to get back to cycling and taking photos, both of which have almost disappeared since July; I’m just thankful to have the support of Claire, William and family when I need them.

Next update when there’s more news. Thanks for reading, you can go and do something more interesting now